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FARA Pediatric Research Initiatives Webinar | January 25, 2024 9 месяцев назад


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FARA Pediatric Research Initiatives Webinar | January 25, 2024

Session Led by: Ron Bartek, FARA President Jen Farmer, FARA CEO The webinar recording includes an overview of some of FARA’s pediatric-focused research and advocacy initiatives such as: ▪️ The Pediatric Outcome Measures Collaborative Workshop ▪️ A white paper on Clinical Trials in Children with FA ▪️ Advocacy initiatives that promote pediatric inclusion in clinical trials ▪️ FA-Child Natural History Study FARA's Mission is to marshal and focus the resources and relationships needed to cure Friedreich's Ataxia (FA) by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases. Friedreich’s Ataxia is a debilitating, life-shortening, degenerative neuro-muscular disorder. About one in 50,000 people in the United States have Friedreich's Ataxia. Subscribe to FARA's YouTube channel    / fara1998   Follow FARA on Facebook   / curefa   Follow FARA on Instagram   / curefa_org  

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