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What I’ve Learned Since My Diagnosis: hEDS, POTS, & Dysautonomia

Hi everyone! This is my chronic illness story part 2! If you haven’t seen part 1, I’ve linked it below. It will be very helpful in understanding this video and there’s a lot of information you should know before watching this one. I’ve listed resources and every single one of my doctors below. I hope this helps. Chronic Illness Story Part 1:    • How Ehlers Danlos Syndrome Affects My...   Instagram @stateofkait:   / stateofkait   TikTok @state.of.kait:   / state.of.kait   Business inquiries: [email protected] ____________________________________________________ Timestamps: 00:00 intro 01:20 My diagnosis/background 02:05 How am I doing? 04:40 How a diagnosis changed my life 08:50 My diet 12:02 How I got my doctors 15:26 Low dose Naltrexone 20:35 Grief stage 21:51 Update on pain 22:56 PRP or prolotherapy 25:59 Kinesiology tape / KT tape 27:50 Sodium for POTS 29:18 Compression socks 30:15 Sibo remedies 33:10 Exercise 35:11 Outro Resources: EDS Society Providers List: https://www.ehlers-danlos.com/healthc... The Guardian article about Alissa Zingman https://www.theguardian.com/society/2... Prism Spine and Joint https://prismspineandjoint.com/ Vitassium electrolyte capsules https://rstyle.me/+yI0xl4HAI9I00Ny_Rr... Trace Minerals https://rstyle.me/+GmTsUoEj-fQ8vrW7b_... KT Tape https://www.kttape.com/products/kt-ta... Hydrant no sugar added electrolytes: https://www.drinkhydrant.com/blogs/ne... Pax vape for healthier cannabis consumption https://rstyle.me/+P8RXPRgO7sGcwuYpBo... My doctors: hEDS: Alana Wright at Prism Spine and Joint, Maryland https://prismspineandjoint.com/dr-wri... Allergist/immunologist: Dr Jonathan Corren, Los Angeles (he is FANTASTIC and very well versed in EDS and comorbidities) https://www.correnmd.com/ PCP: Dr Martha Galvan, https://doctor.webmd.com/doctor/marth... Cardiologist: Dr. Ram Dandillaya http://www.drdandillaya.com/ POTS specialist: Dr Peng Sheng Chen https://www.cedars-sinai.org/provider... Physician who diagnosed me: Marta Long, MD https://www.martalongmd.com/ Rheumatologist: I don’t have a rheumatologist but Kailey told me that Dr. Daniel Arkfeld is one of the best Drs in the country who specializes in rare disease that affect women Gastroenterologist: Dr. Seper Dezfoli https://www.cedars-sinai.org/provider... Paint management: not my doctor, but this is a recommendation from Kailey. Dr. Benjamin Taimoorazy in Beverly Hills is one of the most skilled pain management doctors https://www.bhmigraineandpain.com/pro... Neurologist: Dr. Shalini Mahajan is a neuromuscular neurologist at Attune Health. Not my doc, but a recommendation from Kailey https://attunehealth.com/our-staff/sh... Orofacial Pain Specialist: Dr. Jennifer Buchanan, San Rafel (very familiar with EDS, clinically diagnosed me with trigeminal neuralgia) https://www.jenniferbuchanandds.com/ PRP / Prolotherapy: Dr Gloria Tucker, her whole practice is based around helping people with hypermobile joints and she is very familiar with EDS https://www.gloriatuckermd.com/ Vivid Visions Optometry (diagnosed me with BVD): https://www.vividvisionsoptometry.com/ Therapy Lab, diagnosed me with ASD: https://www.therapylab.com/clinicians... FTC: This video is not sponsored and it is not meant for children.