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Walk with WAPO on Acromegaly Day

November 1st is Acromegaly Awareness Day. For this occasion, we created a video entitled "Walk with WAPO though the experiences of people living with acromegaly". Acromegaly is a rare disorder caused by an excessive production of growth hormone, most often resulting from a growth hormone-secreting pituitary adenoma (benign tumour of the pituitary gland). In this video, nine incredible patient advocates share their personal journeys, from their first symptoms to their path to diagnosis, also touching on other topics such as the profound impact this rare disease has had on their lives and the lives of their loved ones. Each story is unique and each experience matters. There is a particular need for primary healthcare providers to recognize the sign and symptoms of acromegaly so that patients can be quickly referred to an endocrinologist for diagnosis. With a timely diagnosis and the initiation of proper management and treatment, quality of life and life expectancy are greatly improved. A special thanks to David, Donna, Jeremie, Marell, Marie Louise, Martin, Mayulabis, Roz, and Sandra for their courage and generosity in sharing their stories. Help us raise awareness for acromegaly by sharing this video. Together we can improve the journey for acromegaly patients and their families! Timecodes 0:00 – Introduction 0:08 – A few words to describe acromegaly 0:42 – First symptoms 4:57 – The journey to diagnosis 9:22 – Feelings and concerns when diagnosed 12:36 – Treating acromegaly 17:16 – Impact of acromegaly 22:11 – The future with acromegaly, for patients and caregivers To find out more about acromegaly, visit the WAPO website here: https://www.wapo.org/pituitary-disorders/a...