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Help Us Move Forward with Vital Research

Hey everyone, it's Amy from the Raymond A. Wood Foundation. I wanted to personally ask for your help in advancing research that could dramatically improve the lives of those impacted by hypothalamic-pituitary brain tumors, particularly craniopharyngioma. If you haven't already, please consider joining our patient registry – and if you're already part of it, we need your help completing the surveys in the registry. Right now, we're focusing on hunger behavior in craniopharyngioma survivors, and we need 20 more completed surveys to kick off an important research study. This study will directly impact how future clinical trials approach hypothalamic obesity and hunger management—crucial factors that affect the quality of life for our loved ones and patients. I know filling out these surveys takes time, but it's a step that will have a lasting impact on the future of treatments and interventions. Let’s make sure this work leads to meaningful change! Click the link below to join the registry or complete your surveys, and let's push forward together. https://hptumorregistry.iamrare.org/ Together, we can make a difference. Thank you so much for your support! 🙏