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Rare Disease Advisory Board - Is there a need?

A discussion hosted by Rare Diseases South Africa NPC, regarding the potential establishment of an Independent South African Rare Disease Advisory Board. An online panel discussion, starting with a brief presentation by Prof. Chris Hendriksz, who will shared his experience of a similar application in the United Kingdom and discuss how it could benefit all rare disease patients in South Africa. This was followed by a variety of industry specific views, which was then followed by an open and engaging dialogue. Speakers included: Prof Chris Hendriksz - A Rare Cause Kelly du Plessis - Rare Diseases SA Prof Chris Vorster - North West University Dr Jacques Snyman - SAMA Dr Samantha Iyaloo - Council for Medical Schemes Charlton Murove - Board of Healthcare Funders Fakir Chavoos - IPASA