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Patient Impact in Research

Penelope McMillan Penelope has multiple chronic conditions, including severe ME, with 26 years of lived experience of frailty, being homebound, and periods of being bedbound. She has extensive local, national and global networks, both online and in person, with other people who are Frail, Homebound and Bedridden People (FHBP). Penelope actively represents FHBP, creating awareness of FHBP, and advocating for change for FHBP in the health, disability and welfare sectors. Alongside Flinders University researcher, Dr Maria Alejandra Piñero de Plaza, Penelope has helped lead a comprehensive research and innovation project to understand and change lives for FHBP, including those with severe ME. ME/CFS South Australia: https://mecfssa.org.au/ === Penelope shares her expertise in Health Consumer Involved Research and the valuable Insite into role of Health Consumer Representative. Her presentation theme covers: * Topic Scope * Networking * Communication channels * Roles * Tasks