Скачать с ютуб Central Canada Virtual PKD Patient Forum | October 5, 2024 в хорошем качестве

Central Canada Virtual PKD Patient Forum | October 5, 2024

Questions in this presentation: 1:51 Should you be optimistic about the future for people affected by PKD? 2:17 When should you discuss genetics with your children? 3:44 What do the kidneys do? 3:53 Can kidney disease cause anemia? 4:28 How large do polycystic kidneys get? 5:13 What are some of the ways that PKD can affect the kidneys? 5:38 What are some of the ways that PKD can affect the rest of the body? 6:29 Why should we try to slow the decline of kidney function due to PKD, even when we still feel "well"? 7:21 What are the odds of inheriting ADPKD from a parent who has ADPKD? 8:08 What determines how fast I will lose my kidney function? 8:26 If I have PKD1 (the more severe form of PKD genetic mutation), is it possible that my own disease won't be severe? 8:30 What are some of the factors that can influence the progression of my PKD? 9:14 What can a kidney MRI tell my nephrologist about my disease risk? 9:51 Will everyone in my family with PKD have the same disease progression? 10:36 Why do some family members have different disease severity? 11:10 What are things I can do to slow the progression of my PKD? 12:11 Can maintaining a healthy body weight help protect against pain associated with PKD? 12:25 Are there any dietary changes I can make to slow my disease progression (like intermittent fasting, ketogenic diet, etc.)? 12:50 What dietary changes would you recommend for overall health with PKD? 13:03 How does drinking water affect my kidney health? 13:33 I've heard that drinking a lot of water has the same effect as taking the drug tolvaptan. Is this true? 14:02 What effect does drinking a lot of water have on kidney stones? 14:22 What's the relationship between kidney stones and ADPKD? 14:41 Would you recommend that PKD patients take any supplements? 15:11 Is it possible to have more than one type of kidney disease? 15:23 How common is it to have both ADPKD and diabetes? 15:29 How does diabetes affect ADPKD? 15:45 How does high blood pressure affect ADPKD? 16:23 How does the drug tolvaptan affect ADPKD? 16:39 How much of a difference in your kidney decline can you get by taking the drug tolvaptan? 16:42 Who can benefit the most from taking the drug tolvaptan? 16:50 What are the pros and cons of taking the drug tolvaptan? 17:35 How does high cholesterol affect ADPKD? 17:58 Is it safe to take tolvaptan combined with a statin drug, long-term? 18:14 What are some other genetic factors that can have an effect on PKD? 19:38 Why are you optimistic about the future of PKD treatments? 20:45 Is it okay to drink orange juice if you have PKD? 21:03 Is the information in this presentation also applicable to people with ARPKD? 21:17 What are some things that I can do to help my ARPKD? 21:45 Do all nephrologists around the world follow the same guidelines for managing PKD? What if you have a nephrologist who just says 'Your labs are good, see you next year'? 22:06 How do I find a nephrologist who specializes in PKD? 22:21 Will my doctor be offended if I ask for a second opinion about my PKD care? 23:28 What genetic studies are ongoing for PKD? 24:04 How much blood pressure medication is given to control high blood pressure? 24:16 What should my target blood pressure be when I have PKD? 24:39 Do SSRIs cause cysts to grow faster? Is it better to use older antidepressants if you have ADPKD? 25:07 Should a parent control how much potassium a child with PKD eats, if their health is otherwise good? 25:24 When should someone with PKD restrict potassium? 25:33 I am nearing kidney failure. Will the research that scientists are doing right now make a difference for me before I need dialysis or a transplant? 25:50 If I'm nearing kidney failure, what are some things I can be optimistic about? 27:01 Is it okay to take vitamin D if I have PKD? 28:16 Which imaging test is best, to determine kidney size? MRI or ultrasound? 29:48 How can I tell if my pain is from my kidney or liver cysts, and not from something else? 30:37 After a kidney transplant, will my new kidney get cysts? 30:52 Is it possible to predict how long it will take for my kidneys to decline? (Mayo Clinic Calculator) 31:29 Is there a cut-off age for kidney transplants? 31:49 Is kidney replacement possible if you have PKD and IgA nephropathy? 32:11 How often should I get imaging tests for my liver, to track my severe liver cysts? 33:00 If a person is going through menopause and has PKD, is it safe to take hormone replacement therapy? Does HRT have an affect on cyst growth? What are some alternatives to HRT? 33:51 Is there a conclusive test that diagnoses PKD? How do I know if I have PKD1 or PKD2? 34:29 What does eGFR mean? 35:30 What are the chances that I won't have to have a kidney transplant? 36:50 If I have a kidney transplant, would I still take tolvaptan? For our other 2024 PKD Patient Forums, see the following YouTube videos: Atlantic Canada PKD Patient Forum    • 2024 Atlantic Canada PKD Patient Foru...   Western Canada PKD Patient Forum    • 2024 Western Canada Virtual PKD Patie...