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ASG ATTR Webinar, January 21, 2023

Amyloidosis Support Groups ATTR Amyloidosis Webinar, January 21, 2023 (Note: This video of the webinar has been edited for content and time.) Moderater: Muriel Finkel, President, Amyloidosis Support Groups Participants: Mathew S. Maurer, MD, Cardiologist, Director, Cardiac Amyloidosis Center, Professor of Medicine, Columbia University Medical Center Chafic Karam, MD, Neurologist, Associate Professor of Neurology, University of Pennsylvania *Joy Olbertz, PharmD, PhD, Senior Director, Clinical Scientist, Intellia Therapeutics *Anne Ersbøll MD, PhD, Senior Global Medical Manager, Global Medical Affairs, Cardiovascular Diseases, Novo Nordisk *Gustavo Buchele, MD, PhD, Executive Director, Clinical Development, Ionis Pharmaceuticals Craig Spolsky, Advocacy & Professional Relations Director, Pfizer, Inc. *Steven Roblin, PhD, US Medical Director, Alnylam Pharmaceuticals Jocelyn Ashford, Vice President, Patient Advocacy, BridgeBio Pharma Paula Schmitt, Executive Director, Amyloidosis Support Groups *Presentations and discussions by these participants were only authorized for use during the live webinar, not for publication on YouTube. Their contributions have been removed from this video. Chapters 0:00 Welcome and Introduction of Participants 3:24 ATTR Treatment Chart 3:52 Dr. Mat Maurer, Systemic Amyloidosis 27:14 Dr. Chafic Karam, Neurological Complications of ATTR Amyloidosis 56:55 Q&A Session One 1:36:24 Muriel Finkel, Info on the 2023 ASG ATTR Patient Conference this October 1:38:17 Paula Schmitt, Patient Support and Financial Assistance 1:48:25 Jocelyn Ashford, BridgeBio Update 1:50:44 Craig Spolsky, Update on Pfizer Patient Affairs Liaisons for ATTR 1:56:36 Q&A Session Two Amyloidosis support resources referenced during the webinar ATTR TREATMENT CHART https://drive.google.com/file/d/1UqDG... ASG FACEBOOK GROUPS for ATTRv   / hattr   ATTRwt -   / 1487530094602375   Do you have a family member that needs to be tested for ATTRv? FREE GENETIC TESTING IS AVAILABLE at https://www.invitae.com/en/alnylam-ac... https://www.hattrcompass.com/ ASSISTANCE WEBSITES FOR TREATMENTS www.akceaconnect.com www.AlnylamAssist.com www.vyndalink.com In Canada: https://www.pfizer.ca/assistance-prog... ATTR FINANCIAL ASSISTANCE fundfinder.panfoundation.org www.panfoundation.org www.tafcares.org www.healthwellfoundation.org MENTAL HEALTH SUPPORT NAMI Website: www.nami.org NAMI HelpLine: 800-955-6264 https://www.nami.org/About-Mental-Ill... CONTACTS FROM PHARMA PRESENTATIONS Amvuttra Start Form: www.amvuttrahcp.com BridgeBio contact for more information: [email protected] Pfizer contacts for patients and caregivers: togetherforrare.com Vyndalink.com, 1-888-222-8475 8 am -8 pm