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How Many People Have Kabuki Syndrome? Preparing for Clinical Trials: Prevalence & Kabuki Count 7 месяцев назад


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How Many People Have Kabuki Syndrome? Preparing for Clinical Trials: Prevalence & Kabuki Count

You can also view the PDF of this presentation: https://bit.ly/KSFWebinarPresentation... Be Counted at https://kabukicount.com/ in less than three minutes! On Tuesday, March 5, 2024, we hosted Dr. Cynthia Willey, expert epidemiologist, who shared her findings on Kabuki syndrome prevalence with our community. Updating prevalence is part of LEAP, our roadmap to treatments for Kabuki syndrome and we're thrilled to share our progress and next steps with the community. This webinar also features: Dr. Bruce Bloom, KSF Chief Scientific Officer Dr. Clara Tang, KSF Director of Research Amanda Gamboa, KSF Director of Communications and Kabuki Syndrome Parent Help us make the LEAP to treatments for Kabuki syndrome: https://www.kabukisyndromefoundation....

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