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Spinal Muscular Atrophy (SMA) Type 1: How this mom coped with the diagnosis. 8 лет назад


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Spinal Muscular Atrophy (SMA) Type 1: How this mom coped with the diagnosis.

"I was scared of losing him. I was scared of him not having a quality of life."    • Spinal Muscular Atrophy (SMA) Type 1:...   The mother of a 12-year old boy with SMA Type 1 talks about mourning the loss of her dreams for her son, while also celebrating the happy milestones he has reached that she could not have hoped for -- he graduated 6th grade! If your child has SMA Type 1 or another pediatric life threatening illness, this mother's perspective may help you find your way. Visit us at www.courageousparentsnetwork.org to see more videos.

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