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Preparing for the Inevitable: Kidney Care During a Disaster...Lessons Learned

Session: Preparing for the Inevitable: Kidney Care During a Disaster...Lessons Learned Moderator: Edward V. Hickey, III, USMC Veteran, AAKP President; Chair, AAKP Veterans Health Initiative; caregiver; current chronic kidney disease patient (California) Speakers: Helen Rose, MSW, LCSW; Executive Director, Health Services Advisory Group (HSAG), ESRD Network 7; Representative, Kidney Community Emergency Response (KCER) (Florida) Lynne Drawdy, Executive Director, Central Florida Disaster Medical Coalition (Florida) The AAKP National Patient Meeting is the largest gathering of kidney patients, care partners, and living donors in the U.S. with rapidly growing international audience. This event focuses on disease management, research/innovation, policy, and various skills training sessions. The event attracts an audience of Patients, Family Members/Care Partners, Living Donors, Healthcare Professionals, Researchers/Academia, Industry, and Federal Agency Representatives. All presentations are available OnDemand and marketed to the broader public and to targeted audiences based on issue relevance. AAKP has pioneered a unique cross-platform marketing and dissemination effort that assures the highest levels of viewership and continued education and engagement well beyond the event. About the American Association of Kidney Patients (AAKP): Since 1969, AAKP has been a patient-led organization driving policy discussions on kidney patient care choice and medical innovations to improve patient lives and prevent avoidable illness, disability and death. AAKP advocates played a central role in the Congressional authorization of Medicare coverage for dialysis and transplantation (1972), signed by President Richard Nixon (1973), which evolved into the modern End Stage Renal Disease Program. Over the past decade, AAKP patient advocates have helped advance the passage of the bipartisan law modernizing the Organ Procurement and Transplant Network (OPTN) via greater competition and oversight (2023); lifetime transplant drug coverage for kidney transplant recipients (2020); the presidential Executive Order on Advancing American Kidney Health (2019); new job protections for living organ donors under the Family Medical Leave Act (FMLA) via the U.S. Department of Labor (2018); and Congressional legislation allowing HIV-positive organ transplants for HIV-positive patients (2013). Follow AAKP on social media at @kidneypatient on Facebook, @kidneypatients on Twitter, and @kidneypatients on Instagram, and visit http://www.aakp.org for more information.